Information and Education Services for Allied Health Professionals

Huntington's WA provides Education and Information Services to individuals and families affected by Huntington's disease as well as working with health and community service professionals and residential services.  The services provided encompass workshops, seminars, information brochures and other resources, newsletters and social media activities.

Telephone conferencing is also available.

Our small multidisicplinary team includes an Occupational Therapist, Activity Assistant and Specilised Huntington's Practitioners with backgrounds in Social Work and Nursing as well as a Youth and Social Media Officer.  There are a range of support services available for individuals and families impacted by Huntington's disease including provision of services to those living in residential care facilities. Huntington's WA works closely with allied health professionals to ensure the best possible quality of life for people with Huntington's.

Please contact the office if you would like to discuss services available or to request an information session or workshop. Phone 08 6457 7599 email: admin@huntingtonswa.org.au.

There are also a number of valuable resources available including:

Mental illess and capacity in HD - this guide is produced by HDA UK.  Some content within may not be relevant in Australia.  For further information please contact Huntington's WA.  Other mental health supports and services are available at https://www.mhc.wa.gov.au/getting-help/

Living Well with Huntington's Disease: Community of Practice Framework

A Physicians Guide to the Management of Huntingtons Disease

Genetic Testing - International Protocol for HD

Physiotherapist Guide to Huntington's

Understanding Behaviour NSW edition

Occupational Therapy for people with HD - Best Practice Guidelines

A Caregivers Guide for mid to late stage HD for long term Care Facilities and In-Home Agencies

Huntingtons Study Group - education videos