Useful Websites
The following links will provide more information about Huntington's Disease (HD), other Australian and international HD websites, and social networking forums
Other Australian Associations
- Huntington's Australia This website provides a web presence for the Australian Huntington's Disease Association (National).
- Huntington's WA www.huntingtonswa.org.au
- Australian Huntington Disease Association (NSW) http://www.ahdansw.asn.au
- Huntington's Queensland http://www.qahda.com
- Huntington's Victoria http://www.huntingtonsvic.org.au
- Huntington's SA/NT http://huntingtonssa.org/
- Australian Huntington's Disease Association (Tasmania) http://www.huntingtonsaustralia.asn.au/tasmania.html
International HD websites
- International Huntington Association
- European Huntington´s Disease Network
- Huntington's Disease Society of America (HDSA)
- HDSA National Youth Alliance
- Huntington Society of Canada
- Huntington's Disease Association (United Kingdom)
- Scottish Huntington's Association
- HD Associations of New Zealand
- Japan's Huntington's Disease Network
Message Boards, Chatrooms and Blogs
- HD Australia - This is a community run forum for all Australians affected by HD
- The Huntington's Disease Advocacy Centre (American) - A community run site that provides help for families. Includes a message board HUNT-DIS and links to individual stories, blogs, videos, and family websites.
- WeAreHD.org - New US social networking site for the HD community.
General Information
- Stanford University HOPES Project - Provides scientific information for the lay-person
- Your Genes Your Health - A multimedia guide to genetic disorders
Living with HD
- Cure HD - Jim Pollard's website
- Carers WA - http://www.carersaustralia.com.au/
- National Welfare Rights Network Provides information and advice for people with Social Security or Centrelink problems.
- Centrelink
- Taxi Subsidy Scheme http://www.dpi.wa.gov.au/taxis/15155.asp
- Office of the public advocate Advanced Health Directives/Enduring power of Guardianship. www.publicadvocate.wa.gov.au
Carer Information
- Carer Information Pack - Commonwealth Department of Health and Ageing kit for carers.
- Commonwealth Respite and Carelink Centres - Centres provide information about community, aged care, disability and other support services and help to arrange respite care.
- National Welfare Rights Network (NWRN) - The NWRN is a network of community legal centres throughout Australia which specialise in Social Security law and its administration by Centrelink.
Genetic testing & family planning
- Neuroscience Unit - http://www.health.wa.gov.au/services/detail.cfm?Unit_ID=130
- Genetic Support Council - www.geneticsupportcouncil.org.au/
- International guidelines for predictive testing
- Genetics service WA - http://www.kemh.health.wa.gov.au/services/genetics/index.htm#about
Research
- HDLighthouse
- Stanford University HOPES Project - Provides research information for the lay-person
- HD Drug Works (HDDW)
- The Huntington Study Group - Group of clinical researchers from US, Canada, Europe and Australia
- American National Institute of Neurological Disorders and Stroke
- The Hereditary Disease Foundation - US group that funds HD research. Founded by Milton Wexler.
- The Huntington Project
- HD Drug Works - US site provides information on treatment options, drug development and clinical trials.
- High Q Foundation - Funds basic medical and clinical research and drug development in the US.
- CHDI - Funded by High Q Foundation to develop drugs that prevent or slow HD