The Role and History of Huntington's WA
The Australian Huntington Disease Association (Inc.) WA (AHDA) was founded in 1974. It changed its name to Huntington's WA (Inc) (HWA) in 2008.
HWA was formed specifically to improve the quality of life for people with Huntington's Disease, their families and carers in Western Australia. The Association is dedicated to providing individual advocacy and support for the Huntington's community.
Huntington's WA is a non-profit organisation managed by a voluntary board. The Association provides four major areas of support:
- Community development
- Counselling and individual support
- Information and education
Services are also delivered to service providers, health professionals and the general public.
The Association is a member of the Australian National Huntington's Association, a loose collective of state Associations, which facilitates the sharing of information resources, policy development, benchmarking in service delivery and provides a conduit for current research developments.
HWA is a founding member of the Genetic Support Council of WA, a peak body formed to provide organizational and policy support in the area of genetic issues at a State and Commonwealth Government level.
Huntington's WA is one of fifteen neurological support organisations accommodated in the Centre for Neurological Support in Nedlands,WA.
'To enable the best possible quality of life for people with Huntington's Disease, their families and carers, through advocacy, support and education'.