• Annual Report
• Constitution
• Support Services
• Staff of Huntington's WA
• Organisation and Board of Management
• Community Advisory Group

Support Services

HWA employ support staff to provide a range of services to the Huntington's community. These staff are available to talk to any member of the HD community who requires these services.

Primary responsibilities include:

• Support - Community support staff are available to any member of the HD community to provide supportive and professional counselling when required. This can be in the form of a phone call, as part of a home visit or you may choose to come in and meet with support staff of Huntington's WA.
• Home Visiting - Support staff are available to any member of the HD community who requests a home visit. This can be in your home or at the residential facility in which you live.
• Referral - Support staff are available to provide referral to appropriate agencies for various services. These may include the Neurosciences Unit in Mt Claremont, Home and Community Care Programs and other specialty services in the community.
• Systemic Advocacy -HWA address a wide range of issues that directly affect the interests of the Huntington's community in Western Australia, that require a response or reaction from Huntington's WA. The Association will submit responses to decisions made by governments and other decision-making bodies that have an impact on the financial, physical, psychological or emotional well-being of the HD community. Any issue that a member of a Huntington's family may wish us to respond to, will be followed up by the CSO and the Executive Officer.
• Financial Assistance - Huntington's WA provides emergency financial assistance to the HD community. Huntington's WA has a policy that guides our decisions with regard to the assistance given. Community support staff and the Executive Officer will consider all requests.
• Carer Support Groups - these groups meet monthly. They include:
  
  Northern Suburbs - meets on the 4th Wednesday of the month  7.30 pm - 9.30pm
  Central - meets monthly on a Thursday at the Niche 10am - 12noon
  
  As the venue for the meetings varies from time to time please contact the office on (08) 9346 7599 for the venue details of the meetings. ALL ARE WELCOME!
  
  Support staff organise other get-togethers for carers and other community members such as movies, picnics or other outings that may be requested.

• Other Support Groups - Support staff are also responsible for facilitating a number of community support groups; these include:
  
  • South West Support Group - this group meets in Bunbury on a three-monthly basis. It is a mixed group that includes carers, members who have HD and gene positive members. It is organised and facilitated by the support staff
  • The Club - this group meets on an occasional basis. Members of this group have been diagnosed with HD, are symptomatic, but are still able to function independently. The venue usually changes with each meeting as the group normally gets together for lunch.
  • The Travellers -  this group meets on a bi monthly basis. Members of this group have tested positive for the HD gene. However, the group is also happy to include anyone who is undergoing predictive testing or who is at risk of having HD.
  • Youth Group - this group is for young people aged 8-16. The group meets once during each school holiday break, then a camp is organised during the summer holidays. This group is aimed at supporting young people living with a family member with HD or being at risk of HD

• Day Centre - the Day Centre operates every Wednesday from 9.30am to 1.30pm for those that are symptomatic and living in the community or low care residential facilities.
• Holiday Breaks - Retreats are organised at least once a year for all support groups. These retreats are subsidised by the association.

For more information contact Huntington's WA (Inc.)