Become A Member
Buy OnlineCurrent Research

Information for Young People

There is a specially developed Australian website for young people whose lives are affected by HD.

You will find information for children and young adults and get accurate information about HD in an easy to understand format.

To find out more please go to http://www.ourhdspace.org/

Support for young people in WA

Huntington's WA offers youth support groups. One is for young people aged 8yrs-16yrs and the other for those aged 17yrs-25yrs. The 8yrs - 16yrs  group meets once during each school holiday, with a camp being organised once a year. It is hoped that the group for 17yrs - 25yrs will also start to meet on a regular basis and that this group will also have an annual camp. 

For more information please contact Huntington's WA.

Contacts for young carers in WA

WA Young Carers Project
Carers Western Australia

Website: http://www.youngcarerswa.asn.au/

Address: 182 Lord Street, East Perth WA 6000
Mailing Address: PO Box 638, Mount Lawley WA 6929
Tel: 1300 Carers or 1300 227 377
Fax: 08 9228 7488
Email: info@carerswa.asn.au

Respite Centres

Commonwealth Respite and Carelink Centre

Tel:1800 052 222*
* Free call except from mobile phones. Mobile calls are charged at mobile rates.
East Metropolitan
Website: www.redcross.org.au/wa/services_community.htm
Address: 107 Wellington Street, East Perth WA 6004

South East Metropolitan

Website: www.redcross.org.au/wa/services_community.htm

South West

Website: www.redcross.org.au/wa/services_community.htm
Address: Cnr Blair St & Mitchell Cres, Bunbury WA 6230

Kimberley

Address: 61 Herbert Street, Broome WA 6725

Midwest

Website: www.mmhr.org.au
Address: Shenton Street, Geraldton WA 6530

Pilbara

Address: Sutherland Street, Port Hedland WA 6721

Online Support

The internet is a great place to get good, up-to-date information. Unfortunately, though, for every good website there is probably another one that has wrong or unhelpful advice or information. It's important, then, that you learn how to work out how to distinguish between the two.

Here's a few good sites that might point you to the information you need

  • Stanford University HOPES Project Provides scientific information for the lay-person
  • http://www.hdlighthouse.org/ The HDLighthouse mission is to present and explain the latest research findings so that HD families can become proactive in their care, have hope for the future, and make good decisions in the present
  • http://kidshealth.org/ is a site for children, teens and young adults. It has some great information about a whole range of illnesses, disabilities, mental health problems and services. Check it out!
  • http://www.livewire.org.au/ Livewire provides free, safe and fun online communities for families affected by a serious illness, chronic health condition or disability.
  • http://www.beyondblue.org.au beyond blue is a national, independent, not-for-profit organisation working to address issues associated with depression, anxiety and related substance misuse disorders in Australia. See also the  youth site http://www.ybblue.com.au/
  • http://www.headspace.org.au/ Australia's National Youth Mental Health Foundation. The Headspace mission is to deliver improvements in the mental health, social wellbeing and economic participation of young Australians aged 12-25.