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Extra Help & Support

RESOURCES FOR PARENTS

BEYONDBLUE 1300 22 4636 | www.beyondblue.com 
Provides information and support to help everyone in Australia achieve their best possible mental health, whatever their age and wherever they live.

BULLYING NO WAY www.bullyingnoway.gov.au

MEERLINGA www.meerilinga.org.au 
Promoting positive childhoods.

NGALA www.ngala.com.au
Ngala assists parents, carers and families through the ups and downs of raising children. Our support starts before pregnancy and continues through the school years, right up to young adulthood. We’re here for you every step of the way.

NGALA PARENTING LINE 0-18 YEARS
Metro 9368 9368 | Regional 1800 111 546

RAISING CHILDREN NETWORK www.raisingchildren.net.au

The Australian parenting website.

FOR CHILDREN | FOR TEENAGERS

EMOTIONAL INTELLIGENCE www.6seconds.org/emotional-intelligence/get-started-emotional-intelligence

GO ZEN www.gozen.com
Empower your child with Go Zen, a 4 minute video of resilience skills

HEADSPACE headspace.org.au
Better mental wellbeing for young people

HUNTINGTONS WA www.huntingtonswa.org.au

HUNTINGTONS DISEASE YOUTH ORGANISATION www.hdyo.org 
An International organisation for youth affected by HD

IMPROVING THE LIVES OF YOUNG CARERS IN WA www.youngcarerswa.asn.au

KIDS HELPLINE 1800 226 833 | www.kidshelp.com.au 
Anytime. Any Reason. Australia’s only free, private and confidential 24/7 phone and online counselling service for young people aged 5 to 25.

KIDSMATTER AUSTRALIA EARLY CHILDHOOD MENTAL HEALTH INITIATIVE www.kidsmatter.edu.au/early-childhood

LIFELINE 13 1114 | www.lifeline.org.au 
Access to 24 hour crisis support and suicide prevention services.

REACHOUT www.reachout.com.au

RURAL AND REMOTE HEALTH: DEADLY THINKING www.rrmh.com.au/programs/deadly-thinking/

YOUTH BEYONDBLUE 1300 22 4636 | www.youthbeyondblue.com

Available as a Resource Pack

Make learning about Huntington’s more enjoyable for your child with our Family Resource Pack

 

 

Growth wall chart

As Children grow so does knowledge. Grow and learn with the Huntington's WA resource pack.

To measure your children as they grow, the growth chart is also a reminder to use our resource pack. Remember, as they grow their HD knowledge will be growing too!

 

Resiliency Stickers

There's much we can do to help our young ones build resiliency. We can set them up to be stronger so that news about Huntington's doesn't blow them sideways. This includes giving them the tools that can help work through any difficulties ahead.

In other words, we can build their 'Resiliency'.

We've broken the term "Resiliency" down to six key qualities. And to make it more fun for kids, we've matched those six qualities into characteristics represented by these Australian animals:

  • Great Crested Cockatoo - These beautiful, noisy birds are always telling their story. Knowing who you are gives you a strong sense of identity.
  • Magpie - Just like these sassy birds, we gather lots of things from outside our immediate family. By picking up knowledge from others and learning from school we gain strength to soar!
  • Dingo - When it comes to reading their pack, Dingo's are so savvy. Being self-aware and knowing how to manage our feelings helps us get along with others. 
  • Kangaroo - Talk about bounce-back-ability! They're always having fun as a mob. It's crucial to enjoy 'family time'. It helps the little ones to bond and for teenagers to 'off load' if they need to.
  • Numbat - These clever little critters develop support networks outside their immediate family. By connecting to our friends and peers, we can lean on good people if things get tough at home.
  • Echidna - Ever seen an Echidna eat? Google it: It's an amazing and unique skill. We all have a talent or skill that makes us, well - us! Developing your special skill is great for self- esteem and fun on a rainy day!

 

 

Activity Cards

Ten fun-filled activities for you to enjoy with your children and family, and to grow your Huntington Disease knowledge. They are carefully designed to trigger questions and conversations about Huntington's Disease. Each activity reflects inspiring personality characteristics as displayed by the animal stickers.

 

 

Storybook

Our storybook about Ned and Norma Gnome is a fantastic resource to share quality time with your children, have some fun and start a conversation at the same time.


You can download the storybook with the following links Download as .pdf or Download as .epub

 

 

 Purchase your Family Resource Pack

About the Art and the Artist

Rory Charles

  • DOB - 1/3/04
  • Age - 14 years
  • Cultural Group - Wunambal Gaambera, Nyikina, Balangarra
  • Title - Four Seasons My Country
  • Date - 2018
  • Medium - Gel pen on paper

Growth Chart Story

My picture incorporates some of the plants, animals, and activities that occur around the four seasons in my Wanambal Gaambera peoples country near Kalumburu in the far north of Western Australia. I did this because I believe that our children understand the concept of growth and change best through their experiences of the seasons. I then chose animals that are found in WA with strong personal characteristics that children who are impacted by Huntington's disease in their family might be able to identify with. I researched and asked family and community members for stories that might help explain these characteristics a bit better. These stories include:

  • Balngerr the Sulpher Crested Cockatoo
  • Coolbardi the Magpie
  • Orrolu the Dingo
  • Aamba the Kangaroo
  • Noombat the Numbat
  • Gunanji the Echidna

I placed some of these special animals (with others) in the artwork so that the children could see what the landscape looks like in different seasons, the boab trees, theanthills, the open savannah country, the rivers teaming with wildlife and cultural aspects of life with the people dancing.

fish