News

In November 2020 Andrew set out on a challenging hike along the Bibbulmun track. Supported by friends and family Andrew's five day trek raised in excess of $7000. Post community news took up his story.

Sunburnt Films generously sponsored and produced a promotional video to raise awareness about Huntington's Disease and the services provided by Huntington's WA.

Jo Borelli from Perron Institute provides an updateon the WAVE trial being conducted in Perth

On 6th August 2000 Tracey and Damon left Perth on their motorbikes to begin their 6 month Huntington’s Awareness Ride around Australia covering over 31,000 km. Ann Jones looks back on her daughter's amazing achievement of 20 years ago.

Hiba Bilal is currently doing a PhD in Clinical Neuropsychology at Monash University, under the supervision of Professor Julie Stout.She is looking at recruiting participants for her PhD study, which is investigating the factors linked to depression...

In the lead up to the festive season, Elle shares her story about living in a family impacted by Huntington's Disease and the importance of the support provided by Huntington's WA Youth Services.

In late July 2019, Simon Lundy embarked on an incredible journey - cycling from Perth to Darwin to raise $10,000 for Huntington's WA. Simon sits down with Lenni to chat about how his adventure went, why he chose to embark on it, and even shares a...

Andrew has a passion for writing and is currently working on a novel. He's written this short story that we would like to share with the community as part of Huntington’s Awareness month.

#GivingTuesday is a global day of giving fueled by the power of social media and collaboration.

Huntington's WA has been shortlisted as a finalist in this year’s Curtin University Innovation Excellence Award category.

Give Now to Huntington's WA to help provide those affected with the best possible quality of life.

The exciting new ImpactHD Health and Wellbeing app is now live!

The wonderful Huntington's Community recently beat previous fundraising efforts for the HBF Run for a Reason!

On Friday 25th of May, Huntington's WA along with special guests and dignitaries officially launched the Impact HD health and wellbeing app.

The Huntington's WA team will be not be in the Niche from the 5th-17th but will still be accessible via email and telephone. Please bear with us if there is a delay in getting back to you, we will be in touch as soon as possible.

Click the link for a full media release regarding Huntington's Awareness Month and the #LightItUp4HD campaign.

The Month of May is Huntington's Awareness month, find out what we're doing to raise awareness of HD.

On the 16th of November we were thrilled to be chosen as one of the winners of the Impact 100 awards!

Sophie shares her experience of our HD Youth Outreach program

There has been a trend in recent years for Young Adult novels that deal with the real issues: life, death and the tough stuff they don’t write about in children’s books. Think The Fault In Our Stars or The Perks of Being A Wallflower. Most of these...

Our family found out in 2009 that our Mum was gene positive and quite honestly, it frightened me. We had watched our grandfather go through this disease and now I have to witness it all over again.

I have known about Huntington’s Disease and how it affects my family since I was about 11 years old. My grandad wasn’t very sick then. I just thought he was a grumpy old man sometimes. I know now that his mood swings were symptoms of HD.