News

Update on All things Huntington's Australia Well, the merger implementation is in full swing and just about everyone is getting involved in some way, shape or form. Firstly and perhaps most importantly, all staff are in the process of having...

Following your request to receive timely updates about our Huntington’s disease (HD) research efforts, this letter provides information about the opening of the GENERATION HD2 study and a summary of our scientific collaboration efforts in 2022.

We're delighted to share that Huntington's Australia (HA) have appointed a CEO. Welcome Lenni Duffield! Further information from the Chair of HA, Chris Glasson, is available here.

I am writing to inform you that the members who attended recent AGMs of the five Huntington’s State Associations – SA&NT, WA, Tasmania, NSW/ACT and Queensland – have agreed to merge.

Sage Therapeutics are pleased to share an important update on the clinical development program for Sage Therapeutics Inc.’s investigational drug, SAGE-718.

Huntington's WA will once again be part of #Light It Up 4 HD, an initiative that started in Canada some 6 years ago. #Light It Up 4 HD has become a global success story with a vast number of iconic buildings lighting up in blue and/or purple in support...

As you are aware there has recently been a number of cases of local community transmission of Covid19. As a service provider delivering much needed care and support to vulnerable members of our community, the safety of our clients and staff remains our...

In October 2021 our wonderful volunteer Marg Gibson once again organised a High Tea for HD. Ticket sales far exceeded previous years with 170 guests in attendance and an amazing $13000 raised. Read more for full details and all the pics from the event.

It was a beautiful day for our Australia Post sponsored Hunters and Gatherers Community picnic on Sunday 14th November 2021 with around 60 community members, board, staff and volunteers attending. Pics are now available to view.

Between Monday 19 July 2021 and Sunday 1 August 2021 (inclusive) disability workers, persons with disability and their carers can attend any state-run vaccination clinic in Western Australia without an appointment to receive their COVID-19 Vaccination.

Across the globe Huntington's Associations are banding together to raise awareness about Huntington's Disease during May. Huntington's WA is taking part in #LightItUp4HD and #LetsTalkAboutHD and we encourage our community members to share their stories.

David Cohen, journalist at Post Community News, recently interviewed Ann Jones to discuss her connection with Huntington's and her recently awarded Order of Australia. The article appears on page 6 of the Post Community news dated April 17, 2021 and is...

HD Associations across Australia are banding together to mount an urgent and concerted advocacy campaign to get the Commonwealth to support us to work towards achieving better accommodation outcomes for people with HD and their families. Please join us.

Sunburnt Films generously sponsored and produced a promotional video to raise awareness about Huntington's Disease and the services provided by Huntington's WA.

Huntington's WA congratulates Ann Jones AM on her appointment as a Member in the General Division of the Order of Australia

After reviewing data from the PRECISION-HD2 trial, Wave Life Sciences have made the difficult decision to discontinue development of WVE-120102. Complete data from the PRECISION-HD1trial are not yet available, but the data reviewed to date are similar...

On 23 March 2021, the news began rolling out across the world that Roche would stop administering the treatments or placebos to patients in the GENERATION HD1 trial. What does this news from Roche mean for the HD community?

In November 2020 Andrew set out on a challenging hike along the Bibbulmun track. Supported by friends and family Andrew's five day trek raised in excess of $7000. Post community news took up his story.

Jo Borelli from Perron Institute provides an updateon the WAVE trial being conducted in Perth

On 6th August 2000 Tracey and Damon left Perth on their motorbikes to begin their 6 month Huntington’s Awareness Ride around Australia covering over 31,000 km. Ann Jones looks back on her daughter's amazing achievement of 20 years ago.

Hiba Bilal is currently doing a PhD in Clinical Neuropsychology at Monash University, under the supervision of Professor Julie Stout.She is looking at recruiting participants for her PhD study, which is investigating the factors linked to depression...

In the lead up to the festive season, Elle shares her story about living in a family impacted by Huntington's Disease and the importance of the support provided by Huntington's WA Youth Services.

In late July 2019, Simon Lundy embarked on an incredible journey - cycling from Perth to Darwin to raise $10,000 for Huntington's WA. Simon sits down with Lenni to chat about how his adventure went, why he chose to embark on it, and even shares a...

Andrew has a passion for writing and is currently working on a novel. He's written this short story that we would like to share with the community as part of Huntington’s Awareness month.