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Useful Websites

The following links will provide more information about Huntington's Disease (HD), other Australian and international HD websites, and social networking forums

Other Australian Associations

International HD websites


  • Huntington’s Disease Youth Organisation HDYO
    • Comprehensive website dedicated to Huntington’s affected youth around the globe. Contains relevant information for all ages, parents, friends, and professionals adapted to be age-appropriate.
  • Generation Next
    • Information and content about mental health and growing up as a young person.
  • Young Carers WA
    • Information specifically for young people caring for a loved one.
  • Headspace
    •  Australia's National Youth Mental Health Foundation. The Headspace mission is to deliver improvements in the mental health, social wellbeing and economic participation of young Australians aged 12-25.


General Information

Living with HD

Carer Information

Genetic testing & family planning


Crisis Support

  • Lifeline Crisis support and suicide prevention phone 13 11 14
  • Beyond Blue is a national, independent, not-for-profit organisation working to address issues associated with depression, anxiety and related substance misuse disorders in Australia.
  • Call 000 (Emergency Services) if life is in danger