Useful Websites
The following links will provide more information about Huntington's Disease (HD), other Australian and international HD websites, and social networking forums
Other Australian Associations
- Huntington's WA
- Huntington's NSW
- Huntington's Queensland
- Huntingtons South Australia and Northern Territory
- Huntington's Victoria
- Huntington's Disease Association Tasmania
International HD websites
- International Huntington Association
Bridging site for Huntington’s organisations around the globe – find your local HD organisation or contact. - European Huntington´s Disease Network
- Huntington's Disease Society of America (HDSA)
- Huntington Society of Canada
- Huntington's Disease Association (United Kingdom)
- Scottish Huntington's Association
- Japan's Huntington's Disease Network
- Huntington Study Group Education Videos
Youth
- Huntington’s Disease Youth Organisation HDYO
Comprehensive website dedicated to Huntington’s affected youth around the globe. Contains relevant information for all ages, parents, friends, and professionals adapted to be age-appropriate. - Generation Next
Information and content about mental health and growing up as a young person. - Young Carers WA
Information specifically for young people caring for a loved one. - Headspace
Australia's National Youth Mental Health Foundation. The Headspace mission is to deliver improvements in the mental health, social wellbeing and economic participation of young Australians aged 12-25.
Communities
- HDYO - Huntingtons Disease Youth Organisation- an international non-profit voluntary organisation to provide information about HD for young people by young people. UK site.
- Facebook - Huntington's WA
- Huntington’s Disease Lighthouse Families Support Centre
General Information
- Stanford University HOPES Project - Provides scientific information for the lay-person
- Your Genes Your Health - A multimedia guide to genetic disorders
- Huntington Study Group - education videos
- HD Booklets & Publications Canada
Living with HD
- Carers WA
- Centrelink
Commonwealth financial assistance for individuals and carers - Office of the Public Advocate
Advanced Health Directives/Enduring power of Guardianship - Huntington Study Group - education videos
Carer Information
- Carer Gateway- Australian Government information for Carers.
- Carers WA
- Huntington Study Group - education videos
Genetic testing & family planning
Research
- HD Buzz- Huntington's disease research news. Written by scientists for the global community
- Huntington's Disease News
- News HD
- Stanford University HOPES Project - Provides research information for the lay-person
- The Huntington Study Group - Group of clinical researchers from US, Canada, Europe and Australia
- American National Institute of Neurological Disorders and Stroke
- HD Drug Works - US site provides information on treatment options, drug development and clinical trials.
- CHDI - Funded by High Q Foundation to develop drugs that prevent or slow HD.
Crisis Support
- Lifeline Crisis support and suicide prevention phone 13 11 14
- Beyond Blue is a national, independent, not-for-profit organisation working to address issues associated with depression, anxiety and related substance misuse disorders in Australia.
- Call 000 (Emergency Services) if life is in danger
