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Huntington’s WA does not monitor this site & social media profiles daily and we are unable to provide crisis support through these platforms. If you need support or are worried about someone please contact Lifeline on 13 11 14 or visit the link below for a comprehensive list of useful services.

Social Media Terms and Conditions

Huntington’s WA social media platforms are intended to provide general information, support and awareness-raising. No information included on our social media platforms is intended to substitute medical advice and you should always seek advice from your healthcare professionals. When we link to third-party sites, we do so as an information service and convenience to users but do not take responsibility for the content of these links.

Please be aware that Huntington’s WA social media platforms are not continuously monitored.

We have a strong focus on maintaining privacy and confidentiality in our social media platform interactions, but as a user, you need to be aware of keeping your personal information private. You may wish to check your privacy settings on accounts such as a Facebook profile.

By using our social media platforms, you are agreeing to adhere to our code of conduct. You agree to be respectful and honest, and not abuse, intimidate or threaten others, or post any defamatory, obscene, hateful or unlawful material. We reserve the right to remove any posts which we consider violate these guidelines.

Website Terms and Conditions

These terms and conditions apply to the use of this website, (the "Website"), including without limitation, the use of the Website to make purchases or donations. By using the Website for any purpose, you agree to be bound by these terms and conditions. These terms and conditions constitute a binding agreement between you and us. If you do not accept these terms and conditions, you must refrain from using the Website. If you remain on the Website, or return at a later date, you agree to be bound by these terms and conditions. These terms and conditions must be read in conjunction with any other applicable terms and conditions governing the use of the Website.

In these terms and conditions, the terms "we", "us" and "our" are a reference to Huntington's WA.

Right to Use and Access the Website
In consideration for you agreeing to the terms and conditions of this agreement, we agree to provide you with the non-exclusive right to:

  • view the material contained on the Website;
  • access material contained on the Website;
  • submit information as a part of making purchases or making donations over the Website; and
  • otherwise use the Website in accordance with these terms and conditions.

Amendments to Terms and Conditions
We reserve the right to amend these terms and conditions from time to time. Amendments to these terms and conditions will be effective immediately upon us posting a notice of those amendments on the Website. Your continued use of the Website following the posting of such a notice on the Website will represent an agreement by you to be bound by the terms and conditions as amended.

By accessing the Website, you agree that:

  1. you will not transmit any material or information which is offensive, defamatory, obscene, unlawful, vulgar, harmful, threatening, abusive, harassing, sexually oriented or ethnically objectionable;
  2. you will not impersonate any other person;
  3. you will provide current, accurate and up-to-date information about yourself as required under these terms and conditions and to refrain from providing us with inaccurate, misleading or false information;
  4. you will use the Website in a manner consistent with all applicable local, state, national and international laws and regulations;
  5. the internet protocol address (commonly referred to as an "IP address") of the computer from which you access the Website may be logged each time you post an order through the Website;
  6. all information provided by us on our Website is provided in good faith and you accept that any information provided by us is general information and is not in the nature of advice;
  7. we do not warrant that we will respond to questions or comments submitted by you on our Contact page.

General Disclaimer
Access to, and use of, the Website is at your own risk.

We do not accept responsibility for any loss or damage, however caused (including through negligence), which you may directly or indirectly suffer in connection with your use of this Website or any linked website, nor do we accept any responsibility for any such loss arising out of your use of or reliance on information contained on or accessed through this Website.

Exception to Disclaimer
The disclaimer set out in these terms and conditions does not attempt or purport to exclude liability arising under statute if, and to the extent that, such liability cannot be lawfully excluded.

Specific Warnings
You must ensure that your access to the Website is not illegal or prohibited by laws which apply to you.

You must take your own precautions to ensure that the process which you employ for accessing the Website does not expose you to the risk of viruses, malicious computer codes or other forms of interference which may damage your own computer system. For the avoidance of doubt, we do not accept responsibility for any interference or damage to your own computer system which arises in connection with your use of the Website or any linked website.

You acknowledge that despite all reasonable precautions on our part, there is a risk of unauthorised access to, or alteration of, your transmissions or data or of information contained on your computer system or on the Website. We do not accept responsibility or liability of any nature for any such losses which you may sustain.

While care has been taken in the preparation of this Website, we do not warrant the accuracy, adequacy or completeness of information contained on this Website, and we do not undertake to keep this Website updated. No responsibility is accepted by us, our staff and volunteers, or contributors to the Website, for any errors, omissions or inaccuracies in the information provided. We take no responsibility for any content published by third parties and do not endorse any views or recommendations of persons included or referred to in any of the Website content.

The material on this website is intended to provide general information only. It is not intended to be relied upon as a substitute for medical, or other professional, advice. No responsibility can be taken for any consequences that may result from reliance on any information provided on the Website.

Copyright in the Website (including text, graphics, logos, icons, sound recordings and software) is owned or licensed by us. Other than for the purposes of, and subject to the conditions prescribed under, the Copyright Act 1968 (Cth) and similar legislation which applies in your location, and except as expressly authorised by these terms and conditions, you may not in any form or by any means:

  • adapt, reproduce, store, distribute, print, display, perform, publish or create derivative works from any part of the Website; or
  • commercialise any information, products or services obtained from any part of, or thorugh, this Website;
  • without our prior written permission.

Trade Marks
If you use any of our trade marks (whether those trade marks are registered or not) in reference to our activities, products or services, you must include a statement attributing that trade mark to us. You must not use any of our trade marks:

  • in or as the whole or part of your own trade marks;
  • in connection with activities, products or services which are not ours;
  • in a manner which may be confusing, misleading or deceptive; or
  • in a manner that disparages us or our products or services (including the Website).

Restricted Use
Unless we agree otherwise in writing, you are provided with access to the Website only for your personal use. Subject to the other terms and conditions contained herein, you are authorised to print a copy of any information contained on the Website for your personal use. Without limiting the foregoing, you may not without our written permission on-sell information obtained from the Website.

Linked Websites
This Website may contain links to other websites ("linked websites"). Those links are provided for convenience only and may not remain current or be maintained.

We are not responsible for the content or privacy practices associated with linked websites.

Our links with linked websites should not be construed as an endorsement, approval or recommendation by us of the owners or operators of those linked websites, or of any information, graphics, materials, products or services referred to or contained on those linked websites, unless and to the extent stipulated to the contrary.

You may be required to agree to and comply with a third party's terms and conditions in relation to the use of that third party's website.

How We Handle E-mails
We will preserve the content of any e-mail you send us if we believe we have the legal requirement to do so. Your e-mail message content may be monitored by us for trouble shooting or maintenance purposes or if any form of e-mail abuse is suspected.

Security of Information
Unfortunately, no data transmission over the Internet can be guaranteed as totally secure. Whilst we strive to protect such information, we do not warrant and cannot ensure the security of any information which you transmit to us. Accordingly, any information which you transmit to us is transmitted at your own risk. Nevertheless, once we receive your transmission, we will take those steps which we believe, in our absolute discretion, to be reasonable in order to preserve the security of such information.

Termination of Access
Your access to the Website may be terminated at any time by us without notice. Our disclaimer will nevertheless survive any such termination.

Governing Law
These terms and conditions are governed by the laws in force in Western Australia. You agree to submit to the exclusive jurisdiction of the courts of that jurisdiction.

We accept no liability for any failure to comply with these terms and conditions where such failure is due to circumstances beyond our reasonable control.

If we waive any rights available to us under these terms and conditions on one occasion, this does not mean that those rights will automatically be waived on any other occasion. Similarly, the failure of us to enforce any provision of these terms and conditions at any time does not deem, nor is it to be taken as constituting, a waiver of our rights to enforce those provisions.

If any of these terms and conditions are held to be invalid, unenforceable or illegal for any reason, the remaining terms and conditions shall nevertheless continue in full force.


Data Protection / Privacy Policy

Privacy Policy

Huntington's WA (Inc) ("we" or "us") recognises the importance of your privacy and the security of your personal information. We take steps to protect your personal information from misuse and use your information only in the ways described in this Privacy Policy.

We are committed to complying with the Australian Privacy Principles as set out in the Privacy Act 1988 (Cth).

1. Collection

Personal information

We will only collect personal information about you if it is necessary for one or more of our functions or activities.

We will collect personal information through direct communication with you or a person who is responsible for you, except in the following circumstances:

  • you are referred to us by another person or organisation, in which case that other person or organisation may communicate your name, contact details, and the reason for the referral; or
  • you make a donation to us through our telemarketing contractor, in which case our telemarketing contractor will send us your name and contact details so that we can issue you a tax invoice.

The kind of personal information we collect and hold will depend on the services we provide to you.

If you wish to be added to a mailing list or to be contacted by us for any reason, we may collect contact details including your name, phone number, fax number and e-mail address.

If you wish to make purchases from us or donations to us we may collect information necessary to process the transaction, which may include your credit card details, your billing address, and the delivery address for purchases.

If you wish to use our ImpactHD website, we may collect information necessary to create and administer your account, which may include your name and e-mail address, along with any other information you provide to us in connection with your use of the ImpactHD website (including health information, fitness levels and favorite social activities).

If you choose not to provide certain personal information we may not be able to provide you with the product or service you have requested.

Collection of anonymous information from our websites

When you visit our website, or (the "Website"), our server may attach a small data file called a "cookie" to your computer's memory. A cookie does not identify you personally but it does identify your computer.

You can set your browser to notify you when you receive a cookie and this will provide you with an opportunity to either accept or reject it in each instance.  If you reject a cookie, some of the parts or features of our Website may not function properly.

We utilise session cookies to keep track of time spent in our online shop and the online donations pages of our Website. This helps protect your information from unauthorised access by terminating sessions that remain inactive for a certain period.

We use Google Analytics to help monitor the traffic patterns of our Website and to analyse how visitors use the Website. This analytical tool uses persistent cookies to collect standard internet log information and visitor behaviour information in an anonymous form. The information generated by the cookie about your use of the Website (including your IP address) is transmitted to Google. This information is used to evaluate visitors' use of the Website and to compile statistical reports on our Website activity.

2. Use and Disclosure

At the time we collect personal information from you, we will inform you of the way the information is to be used. We will not use or disclose the information for any other unrelated purpose without your consent, except in the following circumstances:

  • your contact information may be used to send news, information about our activities and general promotional material which we believe may be of interest to you. Whenever we contact you, we will always give you an opportunity to opt out of receiving such communications;
  • we also may use your contact details to share information about events and services of other organisations we believe may be of interest to you but we will never disclose your personal information to any other organisation;
  • your health information may be de-identified and used or disclosed for the purposes of research, or the compilation of statistics, relevant to public health;
  • your personal information may be used or disclosed in the case of an emergency;
  • your personal information may be used or disclosed where unlawful activity is suspected, or information must be disclosed to a law enforcement body; and
  • we may disclose your personal information to the extent required by law.

We may use contractors to provide us with information technology support, which may involve access to databases containing your personal information. We take reasonable steps to ensure our contractors keep your personal information confidential and comply with this Privacy Policy.

All the information that we collect is kept confidential to the best of our ability.  

If you request us not to use personal information in a particular manner or at all, we will adopt all reasonable measures to observe your request but we may still use or disclose that information if:

  • we subsequently notify you of the intended use or disclosure and you do not object to that use or disclosure;
  • we believe that the use or disclosure is reasonably necessary to assist a law enforcement agency or an agency responsible for government or public security in the performance of their functions; or
  • we are required by law to disclose the information.


3. Information Quality

We keep your personal information as accurate, complete and up-to-date as possible. We make an effort to ensure this information is of high quality, but this relies on the accuracy and frequency of information provided by you and other third parties.

4. Information Security

We take reasonable steps to protect your personal information from misuse and loss from unauthorised access, modification or disclosure.

Physical material

Hardcopy documents are stored securely on our premises, accessible only by authorised staff and volunteers, using a secure document management system.

Electronic information

Information that is stored electronically is subject to computer and network security. Our databases and network may only be accessed by authorised users using log-in processes. Our access to e-mail and internet is protected by a firewall.

We do not control, and do not accept responsibility for, the privacy practices or contents of any linked website. Please check the privacy policies of linked websites before disclosing any information.

Destruction of personal information

We take reasonable steps to destroy or permanently de-identify personal information which is no longer needed for the purposes described in this Privacy Policy. We generally do this within 365 days.

Upon written request, we will take reasonable steps to destroy all personal information that we have collected from you.

5. Openness

We make our Privacy Policy available on our Internet website and can also provide a hard copy version upon request.

If you would like more information about our privacy practices, you can write to us at:

Huntington's WA
The Niche
11 Aberdare Road
Nedlands WA 6005

Alternatively, please call 08 6457 7599 or e-mail

6. Access and Correction

You have the right of access to personal information we hold about you. If you wish to obtain access to this information, please contact us using the details provided above.

If such a request is made, we will review our records to determine what personal information we hold relating to you and respond to your request as soon as possible, but in any event, within 21 days. We endeavour to ensure the person seeking access is indeed the person the information is about and, in this regard, we may request that identification is provided before the personal information is released.

Once we have notified you of the nature of the personal information relating to you which we hold, we will organise a time for you to view that information. However, in accordance with the Privacy Act, we may withhold some of the personal information which we hold where we consider that:

  • in the case of personal information, providing access would pose a serious and imminent threat to the life or health of any individual;
  • providing access would have an unreasonable impact upon the privacy of other individuals;
  • the request for access is frivolous or vexatious;
  • the information relates to existing or anticipated legal proceedings between us and you, and the information would not be accessible by the process of discovery in those proceedings;
  • providing access would reveal our intentions in relation to negotiations with you in such a way as to prejudice those negotiations;
  • providing access would be unlawful or the denying of access is required or authorised by or under law;
  • providing access would be likely to prejudice an investigation of possible unlawful activity;
  • providing access would be likely to prejudice the administration of the law and justice; or
  • an enforcement body performing a lawful security function has asked us not to provide access to the information on the basis that providing access would be likely to cause damage to the security of Australia.

We do not levy a charge in respect of the making of a request for access to personal information.  However, we may charge you for the reasonable costs incurred by us in providing you with access to the personal information held.

If your personal information changes, or in the event that you no longer wish to receive information from us, then please contact us on the details provided above.

7. Identifiers

We will not use Government identity numbers, such as tax-file or medicare numbers, to identify you.

8. Anonymity

We will provide you with the option of not identifying yourself when interacting with us, as long as it is lawful and practical to do so.

However, there are a number of transactions that cannot be completed, and services that cannot be provided, if requested personal information is not made available to us.

9. Transborder Data Flows

It is possible that  we will receive research requests from outside of Australia to access your personal information. When such a request is received, and unless you have been advised and approved of the transfer, your data will be de-identified. Countries that are most likely to request data include New Zealand, United States, Canada and the United Kingdom.

10. Sensitive Information

We may ask you for health information to provide services to you.

This may include information concerning whether you are at risk or have been diagnosed with Huntington's disease, and information relating to your symptoms, health needs and fitness levels.

We will not collect health information about you without your consent, unless:

  • we are required by law to collect the information;
  • you are incapable of giving or communicating consent in the case of a medical emergency;
  • we need to collect health information to provide you with a health service, and have complied with relevant laws or professional codes of conduct;
  • we must collect the information to commence or defend a legal action; or
  • we collect health information for research, statistical, management or funding purposes, in a way that complies with applicable laws, professional codes of conduct or guidelines approved by the Privacy Commissioner.
  • We will not use or disclose your health information without your consent except:
    • in the case an emergency;
    • where we are required by law to disclose the health information;
    • for the purposes of research, or the compilation of statistics, relevant to public health; or
    • to a person who is responsible for you if you are unable to give or communicate consent.


11. Policy may be Amended

We may, without notice, amend or modify our Privacy Policy by posting an amended Privacy Policy on our website.

Any changes will not apply retrospectively. Accordingly, if at any point we decide to use your personal information in a manner different from that stated when it was collected, we will notify you and you will have a choice as to whether we may use this information in the different manner.

12. Complaints

If you have any questions or concerns about this Privacy Policy or how your personal information is handled by us, you may contact us.  Our contact details are set out above.

We will aim to respond to your request or complaint promptly.  We take all complaints seriously and are committed to a quick and fair resolution.

You may also make a complaint to the Office of the Australian Information Commissioner (phone 1300 363 992).  Their websites also contain further information about making complaints relating to privacy.