Links

The following links will provide more information about Huntington's Disease (HD), other Australian and international HD websites, social networking forums and research information.

Other Australian Associations

• Huntington's Australia This website provides a web presence for the Australian Huntington's Disease Association (National).
• Huntington's WA www.huntingtonswa.org.au
• Australian Huntington Disease Association (NSW) http://www.ahdansw.asn.au
• Huntington's Queensland http://www.qahda.com
• Huntington's Victoria http://www.huntingtonsvic.org.au
• Huntington's SA/NT http://huntingtonssa.org/
• Australian Huntington's Disease Association (Tasmania) http://www.huntingtonsaustralia.asn.au/tasmania.html

International HD websites

• International Huntington Association
  
• European Huntington´s Disease Network
• Huntington's Disease Society of America (HDSA)
• HDSA National Youth Alliance
  
• Huntington Society of Canada
• Huntington's Disease Association (United Kingdom)
• Scottish Huntington's Association
  
• HD Associations of New Zealand
  
• Japan's Huntington's Disease Network

Message Boards, Chatrooms and Blogs

• HD Australia - This is a community run forum for all Australians affected by HD
  
• The Huntington's Disease Advocacy Centre (American) - A community run site that provides help for families. Includes a message board HUNT-DIS and links to individual stories, blogs, videos, and family websites.
• WeAreHD.org - New US social networking site for the HD community.

General Information

• Stanford University HOPES Project - Provides scientific information for the lay-person
• Your Genes Your Health - A multimedia guide to genetic disorders

Living with HD

• Cure HD - Jim Pollard's website
• Carers WA - http://www.carersaustralia.com.au/
• National Welfare Rights Network Provides information and advice for people with Social Security or Centrelink problems.
• Centrelink
• Taxi Subsidy Scheme http://www.dpi.wa.gov.au/taxis/15155.asp
• Office of the public advocate Advanced Health Directives/Enduring power of Guardianship. www.publicadvocate.wa.gov.au

Carer Information

• Carer Information Pack - Commonwealth Department of Health and Ageing kit for carers.
• Commonwealth Respite and Carelink Centres - Centres provide information about community, aged care, disability and other support services and help to arrange respite care.
• National Welfare Rights Network (NWRN) - The NWRN is a network of community legal centres throughout Australia which specialise in Social Security law and its administration by Centrelink.

Genetic testing & family planning

• Neuroscience Unit - http://www.health.wa.gov.au/services/detail.cfm?Unit_ID=130
• Genetic Support Council - www.geneticsupportcouncil.org.au/
• International guidelines for predictive testing
• Genetics service WA - http://www.kemh.health.wa.gov.au/services/genetics/index.htm#about

Research

• HDLighthouse
  
• Stanford University HOPES Project - Provides research information for the lay-person
  
• HD Drug Works (HDDW)
• The Huntington Study Group - Group of clinical researchers from US, Canada, Europe and Australia
• American National Institute of Neurological Disorders and Stroke
• The Hereditary Disease Foundation - US group that funds HD research. Founded by Milton Wexler.
  
• The Huntington Project
• HD Drug Works - US site provides information on treatment options, drug development and clinical trials.
  
• High Q Foundation - Funds basic medical and clinical research and drug development in the US.
  
• CHDI - Funded by High Q Foundation to develop drugs that prevent or slow HD